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Past Genetics, Health, Society News |
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On April 7, 2009, HHS released OHRP Guidance on GINA: Implications for Investigators and IRBs at http://www.hhs.gov/ohrp/humansubjects/guidance/gina.html and a fact sheet for researchers and health care professionals at http://www.genome.gov/Pages/PolicyEthics/GeneticDiscrimination/GINAInfoDoc.pdf
(published April 7, 2009)
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Today, the Surgeon General released a new version of "My Family Health Portrait." This internet-based tool makes it easy for consumers to record their family health history. The new version of the tool is updated for 21st century medicine. It is a standards-based electronic tool, making information easy to share and ready for use in electronic health records (EHRs) and personal health records (PHRs). The tool is also available on an "open source"-type basis, so that other organizations can download and customize it under their own brands. |
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My Family Health Portrait |
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(Posted January 13, 2009)
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Requests for Public Comments |
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Request for Public Comment on the Public Consultation Draft Report on Gene Patents and Licensing Practices and Their Impact on Patient Access to Genetic Tests
(published March 19, 2009)
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SACGHS Requests Suggestions on New SACGHS Priority Issues
(published April 17, 2008)
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Request for Public Comment on the Draft Report for Oversight of Genetic Testing (published November 6, 2007)
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Request for Public Comment on a draft report on pharmacogenomics
(published March 28, 2007)
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Request for Public Comment on a draft report on Policy Issues Associated with Undertaking a Large U.S. Population Cohort Project on Genes, Environment, and Disease (published June 13, 2006)
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Request for Public Comment (on a draft report on coverage and reimbursement of genetic tests and services (published April 4, 2005)
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