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Twenty-Third and Final Meeting - October 5-6, 2010 |
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National Institute of Health
9000 Rockville Pike
Building 31, Conference Room 6C6
Bethesda, MD 20892
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Agenda |
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Agenda
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October 5th Webcast |
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Webcast |
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October 6th Webcast |
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Webcast |
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Presentation Materials for October 5, 2010: |
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A Review of SACGHS' Work 2002-2010
Steven Teutsch, M.D., M.P.H.
Secretary's Advisory Committee on Genetics, Health, and Society
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FDA Oversight of LDTs: Where Are We, and Where Are We Going?
Elizabeth Mansfield, PhD
FDA/CDRH/OIVD
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SACGHS Draft Report and Recommendations on Genetics Education and Training
Barbara Burns McGrath, R.N., Ph.D.
SACGHS Task Force Chair
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Implications of Affordable Whole-Genome Sequencing
Charis Eng, M.D., Ph.D.
Secretary's Advisory Committee on Genetics, Health, and Society
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Laboratory Perspective on Whole Genome Sequencing
Karl V. Voelkerding M.D.
Associate Professor of Pathology
University of Utah, Salt Lake City
Medical Director for Advanced Technology and Bioinformatics
ARUP Laboratories
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Clinical Utility of Whole Exome Sequencing in the Diagnosis of a Child
David Dimmock
Human and Molecular Genetics Center &
Department of Pediatrics
Medical College of Wisconsin
Genetics Center,
Children's Hospital of Wisconsin
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SACGHS Discussion of the Implications of Affordable Whole-Genome Sequencing
Paul Billings, M.D., Ph.D.
Charis Eng, M.D., Ph.D.
Secretary's Advisory Committee on Genetics, Health, and Society
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Public Opinion on Privacy and Data Sharing in Biobank Research
Juli Murphy Bollinger, M.S.
Project Manager
Genetics and Public Policy Center
Johns Hopkins University
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SACGHS CER/CU Workgroup
Marc S. Williams, MD
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Presentation Materials for October 6, 2010: |
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SACGHS Session on Genomic Data Sharing
Charmaine Royal, Ph.D.
Secretary's Advisory Committee on Genetics, Health, and Society
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Perspectives of Racial and Ethnic Groups about Participation in Genomic Research and Data Sharing
Vence L. Bonham, J.D.
Associate Investigator, Social and Behavioral Research Branch
Chief, Educational and Community Involvement Branch
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DNA on Loan: Canadian Approaches to Genetic and Genomics Research with Aboriginal Peoples
Laura Arbour MD
UBC Dept of Medical Genetics
University of Victoria Division of Medical Sciences
Community Genetics Research Program
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Perspectives on U.S. Policies that Address the Involvement of Groups in Genomic Data Sharing
Morris W. Foster
University of Oklahoma
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