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SACGHS Priorities |
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2009 |
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The Integration of Genetic Technologies Into Health Care and Public Health: A Progress Report and Future Directions of the Secretary's Advisory Committee on Genetics, Health, and Society 
(January 2009)
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2004-2008 |
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A Roadmap for the Integration of Genetics and Genomics in Society: Report on the Study Priorities of the Secretary's Advisory Committee on Genetics, Health, and Society.
(June 2004)
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Coverage and Reimbursement of Genetic Tests and Services |
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Coverage and Reimbursement of Genetic Tests and Services
(February 2006)
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Public Comments on Draft Report
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PowerPoint Slides
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Secretary Leavitt's Response to SACGHS
(May 31, 2006)
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Direct-to-Consumer Marketing of Genetic Tests |
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SACGHS Letter to the Secretary of Health and Human Services
(December 8, 2004)
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Secretary Leavitt's Response to SACGHS
(March 3, 2005)
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SACGHS Letter to the Secretary of Health and Human Services
(February 8, 2006)
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Secretary Leavitt's Response to SACGHS
(June 16, 2006)
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Direct to Consumer Marketing Consumer Alert by the Federal Trade Commission
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Surgeon General's Family History Initiative |
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SACGHS Letter to the Secretary of Health and Human Services
(June 7, 2005)
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Genetic Discrimination |
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SACGHS Letter to the Secretary of Health and Human Services
(June 27, 2003)
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Secretary Thompson's Response to SACGHS
(October 10, 2003)
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SACGHS Letter to the Secretary of Health and Human Services
(March 29, 2004)
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Secretary Thompson's Response to SACGHS
(August 12, 2004)
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SACGHS Letter to the Secretary of Health and Human Services
(May 3, 2005)
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Compilation of Public Comments (15MB)
(September - November 2004)
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Legal Analysis of the Adequacy of Current Law
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Perspectives on Genetic Discrimination Video DVD
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Secretary Leavitt's Response to SACGHS
(November 8, 2005)
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Genetics Education and Training of Health Professionals |
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Resolution of the Secretary's Committee on Genetics, Health, and Society on Genetics Education and Training of Health Professionals
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Health Information Infrastructure |
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SACGHS Letter to the Secretary of Health and Human Services
(February 8, 2006)
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Secretary Leavitt's Response to SACGHS
(May 12, 2006)
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SACGHS Comments to the Health Information Technology Policy Committee on the Definition of Meaningful Use of an Electronic Health Record
(June 26, 2009)
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Large Population Studies |
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Policy Issues Associated with Undertaking A New Large U.S. Population Cohort Study of Genes, Environment, and Disease
(March 2007)
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Oversight of Genetic Technologies |
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SACGHS Letter to the Secretary of Health and Human Services
(April 27, 2007)
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Secretary Leavitt's response to SACGHS
(Aug 27, 2007)
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U.S. System of Oversight of Genetic Testing: A Response to the Charge of the Secretary of Health and Human Services
(April 2008)
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SACGHS letter to the Secretary of Health and Human Services
(August 18, 2008)
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Pharmacogenomics |
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Realizing the Potential of Pharmacogenomics: Opportunities and Challenges
(May 2008)
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Public Comments on Draft Report
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SACGHS letter to the Secretary of Health and Human Services
(August 18, 2008)
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Gene Patents and Licensing Practices and Patient Access to Genetic Tests |
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In the fall of 2006, SACGHS initiated a study to assess the positive and negative effects of gene patenting and licensing practices on patient and clinical access to genetic tests and on the public's health and quality of life. In March 2009, SACGHS released a Public Consultation Draft Report on Gene Patents and Licensing Practices and Their Impact on Patient Access to Genetic Tests for public comment until May 15, 2009. During the summer of 2009, SACGHS will be reviewing the public comments and any relevant new data and revising the report accordingly. The final draft report and recommendations will be discussed at SACGHS' October 2009 meeting. Although SACGHS is no longer seeking public comments on the consultation draft, that document and its appendices will be available at this page until the final report is posted.
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DOWNLOAD PUBLIC CONSULTATION DRAFT REPORT |
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DOWNLOAD APPENDIX 1 |
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DOWNLOAD APPENDIX 2 |
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