SACGHS June 12, 2009 - Presentation Materials
Nineteenth Meeting - Day Two
Washington, DC
  Opening Remarks  
  Steven Teutsch, M.D., M.P.H.
SACGHS Chair
 
  Slides  Webcast   
 

Report from the Direct-to-Consumer Genetic Testing Task Force  
  Presentation of Draft Report on Direct-to-Consumer Genetic Testing  
  Sylvia Au, M.S., CGC
SACGHS Member
 
  Slides  Webcast   
  Committee Discussion and Decisions Regarding Draft Report on Direct-to-Consumer Genomic Services  
  Webcast   
 

Session on Clinical Utility and Comparative Effectiveness  
  Clinical Effectiveness, Clinical Utility, Comparative Effectiveness: An Evolving Landscape  
  Gurvaneet Randhawa, M.D., M.P.H.
Agency for Healthcare Research and Quality
 
  Slides  Webcast   
  Future Directions and the Role of Genomics in Comparative Effectiveness  
  Harold Sox, M.D., M.A.C.P.
Chair
Institute of Medicine's Committee on Comparative Effectiveness Research Priorities
 
  Webcast   
  Role of Genomics in Comparative Effectiveness Research, NIH Perspective  
  Michael Lauer, M.D
Director, Division of Cardiovascular Sciences
National Heart, Lung, and Blood Institute
National Institutes of Health
 
  Slides  Webcast   
  Future Directions and Developments in Research Methodologies  
  Steven Goodman, M.D., M.H.S., Ph.D. (TBC)
Professor of Oncology
Johns Hopkins Kimmel Cancer Center
 
  Webcast   
  Impact of Comparative Effectiveness Findings on Clinical Practice  
  Marc Williams, M.D.
SACGHS Member
 
  Slides  Webcast   
 

Updates on Federal Activities Related to Genetics  
  Report from the Centers for Medicare and Medicaid Services on Evidentiary Standards for Coverage Decisions on Genetic Tests  
  Jeffrey C. Roche, MD, MPH, Medical Officer
Division of Items and Devices
Coverage and Analysis Group
Office of Clinical Standards and Quality
Centers for Medicare and Medicaid Services
 
  Slides  Webcast   
  Q & A  
  Webcast   
  Family History State-of-the Science Conference and Family History Tools  
  William (Greg) Feero, M.D., Ph.D.
Senior Advisor to the Director for Genomic Medicine
National Human Genome Research Institute
 
  Slides  Webcast   
  Activities Related to Genetic/Genomic Data Standards Development for Health Information Technology  
  Jessica Nadler, Ph.D.
AAAS Science & Technology Policy Fellow
Personalized Health Care Initiative
Department of Health & Human Services
 
  Slides  Webcast   
  Q & A  
  Webcast   
  Public Comments  
  Webcast   
 

Update from the SACGHS Gene Patents Task Force  
  Overview of Public Comments on the SACGHS Consultation Draft Report on Gene Patents and Licensing Practices and Their Impact on Patient Access to Genetic Tests  
  James P. Evans, M.D., Ph.D.
Chair
SACGHS Task Force on Gene Patents and Licensing Practices
 
  Slides  Webcast   
 

  Closing Remarks - Dr. Teutsch  
  Webcast   
 


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