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Breakout Webcasts |
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Morning Session (before break)
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Morning Session (after break)
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Afternoon Session (before break)
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Morning Session (after break)
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Day 2 Webcasts
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Presentation Materials for Day 1 |
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Update on the Clinical Utility and Comparative Effectiveness Task Force
Marc Williams, M.D.
SACGHS Member
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Briefing on the Secretary's Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) Education Subcommittee
Jana Monaco
Co-Chair, Education and Training Subcommittee, ACHDNC
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Overview of Draft Report and Draft Recommendations
Barbara Burns McGrath, R.N., Ph.D.
SACGHS Member
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Future Directions in Health Information Technology
Joyce Mitchell, Ph.D.
Professor and Chair, Department of Biomedical Informatics
University of Utah School of Medicine
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Introduction to Genomic Data Sharing
Charmaine Royal, Ph.D.
SACGHS Member
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Review of Federal Activities Related to Genomic Data Sharing
Laura Lyman Rodriguez, Ph.D.
Acting Director, Office of Policy, Communications, and Education
National Human Genome Research Institute
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Genomic Data Sharing: Health Care Systems Model
Catherine Schaefer, Ph.D.
Executive Director, Research Program
Kaiser Permanente
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Genomic Data Sharing: Academic Model
Daniel Masys, M.D.
Professor and Chair, Biomedical Informatics
Vanderbilt University
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Genomic Data Sharing: Government Model
Laura Lyman Rodriguez, Ph.D.
Acting Director, Office of Policy, Communications, and Education
National Human Genome Research Institute
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Genomic Data Sharing: Commercial Model
Mark Hoffman, Ph.D.
Director, Translational Medicine
Cerner Corporation
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Genomic Data Sharing: Consumer-Controlled Model
Robert H. Shelton, M.B.A.
Co-Founder, Chairman, Chief Executive Officer
Private Access, Inc.
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Presentation Materials for Day 2 |
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Carrier Screening for Sickle Cell Disease
R. Rodney Howell, M.D.
Chair
Advisory Committee on Heritable Disorders in Newborns and Children
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Development of an FDA Adverse Event Reporting Mechanism for Laboratory Developed Tests
Alberto Gutierrez, Ph.D.
Office of In Vitro Diagnostic Device Evaluation and Safety
Food and Drug Administration
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ONC and HITECH
David R. Hunt, MD, FACS
Medical Officer
Office of the National Coordinator for Health IT
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MEDCAC Meeting on Pharmacogenomic Testing for Anticancer Therapie
Jeffrey Roche, M.D., M.P.H.
Coverage & Analysis Group, Office of Clinical Standards and Quality
Centers for Medicare & Medicaid Services
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AHRQ Evidence-Based Reports Relevant to Genetic Testing
Gurvaneet Randhawa, M.D., M.P.H.
Center for Outcomes and Evidence
Agency for Healthcare Research and Quality
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Development of Genomics Objectives for Healthy People 2020
Muin Khoury, M.D., Ph.D.
National Office of Public Health Genomics
Centers for Disease Control and Prevention
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Committee Report on the Retention and Use of Residual Dried Blood Spot Specimens after Newborn Screening
R. Rodney Howell, M.D.
Chair
Advisory Committee on Heritable Disorders in Newborns and Children
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