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Office of Biotechnology Activities
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National Institutes of Health - Office of Science Policy
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Background Reading
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Secretary's Advisory Committee on Genetics, Health and Society 2008 Report, U.S. System of Oversight of Genetic Testing: A Response to the Charge of the Secretary of Health and Human Service
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Genetics & Public Policy Center: Analysis of public comments on the SACGHS genetic testing oversight draft report, 2008
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Javitt G, Katsanis S, Scott J, Hudson K: Developing a blueprint for a genetic testing registry.Public Health Genomics, 13:95-105, 2010.
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Javitt G, Hudson K: Public health at risk: failures in oversight of genetic testing laboratories, 2006.
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Teutsch SM, Bradley LA, Palomaki G, Haddow JE, Piper M, Calonge N, Dotson WD, Douglas MP, Berg AO and the EGAPP Working Group: The evaluation of genomic applications in practice and prevention (EGAPP) initiative: methods of the EGAPP working group. Genetics in Medicine, 11:3-14, 2009.
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Zonno K, Terry S: A call for action from Genetic Alliance: Registry of genetic tests -- A critical stepping stone to improving the genetic testing system. Genetic Testing and Molecular Biomarkers, 13:153-154, 2009.
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Zonno K, Terry S: Transparency, Openness, and Genetic Testing. Genetic Testing and Molecular Biomarkers. 13(4): 433-434, 2009.
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